Coping With Diseases
There is nothing more desolate than a debilitating disease and social isolation. Sometimes people stop talking to you because they don't know what to say - they can't imagine what it would be like to have your condition. Sometimes it is too depressing for other people to think about it, so they avoid you.
Yet you very likely don't have any other friends with your condition. Furthermore, those friends have their own disabilities, and can't easily get out of the house to meet with you.
Here we offer you another chance to find those who understand your situation, and can share the experience with you. This also may be a chance to exchange ideas that have worked with you. How do you get access to home health care when you can't afford it? How do you work with the regulations and paper work? How do you get your doctor to listen to you? To change your medications? To tell you the truth about your medical condition? Is it OK to say "no" to your doctor's advice when it doesn't seem right to you? Will you lose your doctor that way?
Note regarding medical information: These communities are not coordinated by health care professionals. Instead they are self help groups. Therefore, don't treat the information you get here as medical advice. View these as ideas to be explored and confirmed with other licensed medical resources